The Challenges of Young Parents

During my research on the history of Cerebral Palsy in NZ I have interviewed many older parents, who revealed the hardships of yesteryear. They told of tough times with very little support and saw a dim future for their sons or daughters.

Those were the days when official policies pointed to a life in institutions, tucked away from the public eye.

Thankfully times have changed but the modern era brings with it a whole new set of problems. I would like to hear from the younger parents to find out what hurdles they needed to overcome to give their children a brighter future.

What advice did you receive when your child was first diagnosed with Cerebral Palsy?


"We all need support"

Was the advice encouraging or did you feel you had to find your own way of doing things?

Were you provided with any equipment  from official agencies or did you indulge in good old kiwi ingenuity and manufacture your own gear? When your child reached school age did you have any difficulties in enrolling him/her into school? Did you choose mainstreaming for your child or did you choose a special education option? If you chose mainstreaming did you receive encouragement from your local school?

If your son or daughter has reached school leaving age what are their employment and accommodation goals? Have you explored these options with them? If so what have you discovered?




"What are today's challenges"

Pioneers like Paulette Leaning, Dr Earl Carlson and attendees at the first 1951 conference worked hard to give cerebral Palsy a better quality of life. It will be most interesting to hear from young parents on how they rate the quality of life, in contemporary times for their sons and daughters and what challenges need to be faced in the future.

Drop me a line sometime. I love to hear from you.

Ross Flood

rflood@cpsociety.org.nz  

 
2011 Archive Articles:

ATTITUDE AWARDS on Horizon 13/10/2011
Cricket for people with disabilities 7/10/2011
Rugby World Cup-- Great...Almost 30/9/2011
Try a fresh approach to networking 21/9/2011
“Give it a go” day 14/9/2011
Christchurch Schools Boccia Tournament 7/9/2011
getPhysical is up and running 1/9/2011
Winter and the Danger of Fire 24/8/2011
Sail with Spirit of Adventure 17/8/2011
How about a card system for parking? 11/8/ 2011
Milestone Wilson Home Anniversary 2/8/2011
Sport’s menu widens 27/7/2011
Why so Ga-ga? 20/7/2011
Let’s round up these cowboys and girls 13/7/2011
Celebrities’ embraced; diets on hold 6/7/2011
FUTURE BOCCIA CHAMPIONS ON DISPLAY 28/6/2011
The ten year fire safety plan 22/6/2011
Inter-ACT Disability Arts Festival 15/6/2011
Repairs@accessable 8/6/2011
A heads up on Auckland Transport's HOP Card 30/5/2011
IF YOU DON’T CARE, HOW CAN WE 19/5/2011
Lynette “Lives the day" 12/5/2011
Feedback from the Ministry of Health’s Consumer Consortium – April 2011 Meeting 3/5/2011
The Big Day 28/4/2011
George Departs the Disability Scene 19/4/2011
Sound business plans funded 13/4/2011
Domestic abuse is a reality 6/4/2011
Auckland Council Disability Group Call for applicants 30/3/2011
New model on trial in BoP 25/3/2011
60th Anniversary (A timeline; most worthy) 17/3/2011
Remodelling Disability Support 8/3/2011
Join us on Facebook 1/3/2011
Boccia across the Ditch 22/2/2011
JAFA-ville's access is improving 15/2/2011
Parking problems at Festival 1/2/2011
Demystifying Disability via TV 25/1/2011
Boccia Rolls into Top Gear 18/1/2011 (Video & Photos)
New Year (1/1/2011) (Video)
Brunch at Barrel Hall (Auckland) 7/12/2010 (Photos)
Attitude Awards 2010 (03/12/2010)
Difficult terrain no sweat for Beachwheels 26/11/2010
getOnYourTrikes gets on TV1 19/11/2010
All Modes of Transport Welcome 22/10/2010
Dizzy over thought-controlled wheelchairs 15/10/2010
Perfect Boccia Opportunity 8/10/2010
A fun event to pencil in 3/10/2010
The dark side beckons you 23/9/2010
Give Boccia a go out West Auckland 16/9/2010
Photos urgently required 8/9/2010
A man of many talents 31/8/210
Disability Rights Workshop 10/8/2010
A Worthy Read 3/8/2010
Exquisite, Breathtaking, Provocative 27/7/2010
“Mamma Mia” what a night!!! 20/7/2010
(Video-Photos)
The Foghorn Experience 13/7/2010
Beyond Joke and Pocket 6/7/2010
Boccia circuit in full swing 30/6/2010
New players welcome to Bridge Battle 25/6/2010
A video resource kit 17/6/2010
2010 Review of Human Rights in New Zealand 10/6/2010
Early initiatives make the man 3/6/2010
Unforgettable Journeys 27/5/2010

Subsidized insulation and heating 20/5/2010
“Big OE on Wheels" 13/5/2010
Discussion on the causes and consequences of CP 6/5/2010
ADHB needs your input 29/4/2010
“Know How” Expo a must for Diaries 22/4/2010
Knight champions cord blood research 14/4/2010
Spark your creative juices 6/4/2010
Mike agrees, Adam’s a cool dude 30/3/2010
A Dummy's Guide to Cord Blood and Stem Cells..... :) 23/3/2010
Auckland Trots Night 2010 16/3/2010 (Photos)
Changes to equipment and modifications services 9/3/2010
Bob knew anything is possible 2/3/2010
Special Education Review ! (19th Mar.!) 20/2/2010
People Getting Out There 10/2/2010
Disability perspective of Avatar 3/2/2010

AusACPDM Conference - Christchurch 26/1/2010
CP Society Holiday Boccia Tournament 15/1/2010 (Photos)
“Getting Out There” in Hamilton 5/1/2010

For Archive Articles
DISABILITY SECTOR HAPPENINGS
CLICK HERE (updated 1st March 2011)

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